Trust is an important factor in shaping the relationship between science and the public. In November, we convened a round table discussion on trust and health data, as part of an ongoing collaboration with colleagues at the University of Oxford. Bringing together philosophers, social and natural scientists and engagement experts, we focussed on how we define and operationalise questions of trust in the context of health data. We presented work from the Your DNA, Your Say study, conducted at Wellcome Connecting Science, that shows how trust in the actors using health data varies between doctors, non-profit and for-profit researchers, and how the measures that people say would enable trust vary across the 22 countries represented in that study.
The Your DNA, Your Say findings on trust are written up in this blog from the Global Alliance for Genomics and Health, and summarised in the infographic here and below.
